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Icy's Crappy Health Updates


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23 hours ago, Iceheart said:

Fun body fact! The bladder and bowels are controlled by nerves that come off the base of the spinal cord, right where my shit’s getting squashed. Without anti-inflammatories, I feel like I have to pee ALL THE TIME. But I don’t have to pee. It’s great.

Also, the marks in red are where they’re popping the tops off my vertebrae on Friday.

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I think this is kinda what happens to my did from time to time due to his MS. 

How long are you going to be in the hospital for?

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I’m hoooome! My one cat is so mad at me for leaving her and coming back with a walker and unable to hold her on my boobs.

Okay! Progress is made! I have a double laminectomy on the calendar for June 18. Turns out that *cough* age related degeneration was actually another severely herniated disc, so both thoracic and lumb

Better news today from spine doctor #1! Since I respond well to steroids, he's going to try epidural steroid injections. And I get to have the first one on Monday. If this works, I'll be able to

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No idea when surgery is on Friday! They’ll let me know around Wednesday or so. I should only be in the hospital overnight, fingers crossed.

So I went in for my Coronavirus test, got through that with no incident, but then got carsick and puked all over the car. It was delightful, of course.

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I know when surgery is on Friday! Arrival time is 7:15am, surgery is at 9:15am. They have me scheduled for two hours on the table, and then I get to hunker down in my hospital bed and get pain meds pumped directly into my veins.

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Surgery went well! I mean, no one has told me any specifics but my mom got the rundown from my surgeon while I was in recovery.

Recovery is… eh. I have a headache and can’t hold food down, so they’re keeping me another night. But I’m not tied to the bed with anti-blood-clot leg cuffs now, and I’m cleared to move independently so I can toilet myself… thankfully, peeing was an ordeal last night.

Pain is progressively getting better, though, and the symptoms that got me the surgery in the first place have improved, so yay!

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So my mom just called me! She was my patient chaperone, so she got the run down of how it went and all I got was “it went great! You did great!”

Apparently I have some stenosis in the thoracic region which is uncommon there, so he had to re-adjust the disc to fix that.

The disc in the lumbar region had calcified around my spinal cord, so he had to work extra hard to get that one out.

I would not have suspected it was that bad! Even as much pain as I was in.

My mom is pissed at all the doctors and therapists in the beginning that told me it was just nothing now. I’m just grateful that I found one that caught it before (hopefully) any permanent damage happened.

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It's going to be a long road to wellness but this a good start. And kinda an indictment of how bad the US medical community really is. You get shiny bright spots and then people who just don't want to look further.

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23 hours ago, Iceheart said:

I’m hoooome!

My one cat is so mad at me for leaving her and coming back with a walker and unable to hold her on my boobs.

 

I can't seem to be able to 'like' this post.

I get the following error message after I try :

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But, please, rest assured — I like it v. much! Glad you're home! Glad you're well! May things only get better and better for you from now on!

 

[edit : whoops! it worked now! I like it! It 'like'd!]

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  • 2 weeks later...

This entire process was severely undersold to me. I was told:

This would be an outpatient procedure if I wasn’t having two at once.

I ‘d only have to stay one night in the hospital.

I’d only need to take two weeks off from work.

Beyond that it’s a six week recovery time, but it’s more six weeks of taking it easy.

The reality?

Two nights in the hospital.

They want me to take the full TWELVE WEEK recovery time off work. I am making no money while recovering, so I negotiated two weeks of WFH starting Tuesday, and then going back to the office under full Bend, Lift and Twist restrictions after that just for a trial run to see if I can handle it so early.

I can’t swim until I get re-evaled at my six week post-op… at the end of July.

BLT restrictions remain in place for the entire TWELVE WEEK recovery period, twice as long as originally planned. I can’t even start to incorporate exercise into my life again until the end of August.

That’s my whole summer. Damnit.

Anyway, tomorrow is two weeks since surgery and I’m doing as well as can expected. Probably better than most since I went into this with two years of strength training under my belt.

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That stinks. No bacon, lettuce and tomato sandwiches for 12 weeks? During peak tomato season? Preposterous!

Seriously, that does really stink. Hopefully you recover faster than they are projecting!

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Regional differences are fun. I'm like - no swimming sucks, but summer is a great time to have to stay inside and not do anything! 

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  • 2 weeks later...

Okay, THIS summer may have been a lucky one for being grounded… it’s been basically 5 days of cold and rainy (like, sweatshirt cold) with 3 days of intense heat and humidity over and over since the beginning of June…

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  • 3 weeks later...

6 week post op was today, and I’m doing very well! I don’t need any more imaging, I can start PT (thank GOD, dieting is not working and I keep getting bigger), and as long as I don’t spend more than an hour in the water and it’s not hot water I can submerge my incisions (there is one tiny scab left, ugh).

So I went to the beach right after my appointment.

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  • 1 month later...

One more update! I had my 12 week post op yesterday, and I'm being sent on my merry way with the surgeon declaring it a job well done.

Thing is, I still have nerve pain, numbness, and weakness in my legs. I asked about getting injections for that, and he says that's a good next step, but I'm not allowed to try until December or so. But I get to take as much Ibuprofen 800 as I want in the meantime...

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  • 1 month later...
On 8/31/2021 at 4:16 PM, Iceheart said:

Thing is, I still have nerve pain, numbness, and weakness in my legs. I asked about getting injections for that, and he says that's a good next step, but I'm not allowed to try until December or so. But I get to take as much Ibuprofen 800 as I want in the meantime...

I have an appointment regarding this at the end of the month. So, injections may be starting up again soon.

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