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Posted 11 February 2020 - 04:51 PM
So many of you may or may not know that we've been trying to figure out what on earth is going on with my youngest since, well, 2 days after he was born. The past year has been a pretty painful experience in going through the wringer trying to get answers. Finally, the last few weeks have felt like progress in getting my son help with medication, IEPs, etc.
Today we went for our sleep study follow up and found out that he does indeed have mild sleep apnea, and they believe its something obstructive. I feel so bad! This could also impact his ADHD diagnosis (however, I'm pretty sure he does have it, but this is probably making it worse). I hate the idea that we are probably signing him up for another surgery, but I just want my little guy to be able to live his best life. The other thing I'm worried about is that it may just be reflux related, which brings us back full circle to when he was 2 days old and stopping breathing every time he spit up. 😩 I hate that reflux is still possibly ruining his life.
Posted 11 February 2020 - 05:56 PM
That sucks. I'm trying to get my kids' insurance changed so we can change pediatricians. I want to talk to them about Luke's sleeping and his breathing. I swear the kid can't breathe normally. And he snores. LOUDLY. But our old ped refused to even look into it, just kept telling us that Luke is autistic and Noah is fat.
Good news though! With Luke we decided to not push potty training or sleep training or any of that training stuff that stresses people out and just let him come around on his own, and I'm happy to report that since turning 4 two weeks ago, he's just decided to start sleeping in his own bed and using the potty by himself. He's had like 3 accidents in public where he didn't want to stop playing to use the toilet, but only 1 incident at home where he started to pee but stopped himself and went to the restroom. So woohoo!!
Posted 11 February 2020 - 08:01 PM
I'm glad toileting is going well! Ethan just finally came around over winter break. Still wetting overnight, I think that is going to take a few more years. Like I said, when he is sleeping it is so heavy that there's no way that is going to wake him up. Brainwave activity is normal, on the bright side, so there's that.
Posted 12 February 2020 - 08:35 AM
My wife and I don't have kids of our own, but our six year old niece is kind of a part time kid for us.
She's had a wild ride in the past few years. Right before Christmas two years ago, she was in a bad car accident with her family. Everyone else was fine, but the impact happened right where she was sitting in my bro-in-law's truck. She suffered a severe head injury and had to be airlifted to a specialist children's hospital a three hour drive away. The injuries were so severe that she technically flatlined and died twice on the way to that hospital.
There were at least two different times where we thought we'd lost her. When we knew she'd at least make it, there were a lot of times where we weren't so sure that she'd ever walk or talk again. She eventually had to put in a lot of work to basically relearn everything all over again, but now it's as if nothing ever happened at all. I even took her to a concert with me last summer and she had the time of her life.
Some stuff still lingers a little bit. Her vision has never been that great since, and she still has some PTSD issues and sometimes has a lot of trouble focusing. But given the alternative that almost happened, we're all totally okay with continuing to put in the work with her.
Posted 13 February 2020 - 10:34 AM
So Lyra's been acting weird the last few days--not eating much, back hurting, glassy eyed for a bit then it going away. Yesterday she's peeing constantly, and tells us her poop has been white. She shows us when she goes next, and yeah pretty pale. Googling it results in almost nothing good, so I've purposely avoided reading too deep into it (there's very few things I dislike more than self-diagnosis via the internet). We're waiting for the doctor to call back because only they can order labs, so I have a ziploc of white **** up on a high shelf. Super fun trying to get a piece of **** out of the toilet with a fork and into a ziploc, let me tell you!
Eli, meanwhile, has had what we think was either scarlet fever or fifth's disease, a big spoltchy body rash that makes his body feel like a lizard and made his face drained of color and look like a cancer's patient. He's a whiny little boy when he's not feeling well, but fortunately he seems to be just about over it. His teeth, however, are all ****ed up.
Katie, who's had some severe anxiety issues, is feeling it come back, even stronger now that we're worried about Lyra.
And now I have a coworker who's obsessed with corona virus and thinks every sneeze someone makes is it, is freaking out even more about a second coworker who came back from Bangladesh and has been sick and out of the office for two weeks.
Super ****ing fun.
Posted 14 February 2020 - 08:14 AM
We got her to the doctor yesterday. She was x-rayed, and it was clear: she has so much gas stored up inside her that she didn't have any bile left, which is what turned her poop pale (it wasn't bone/milk white, which is apparently when you have to worry about hepatitis and other liver issues). So basically, she needs to fart it all out, and the poop will return to normal color once she's had some time to regenerate some bile. The back/stomach pain, constipation, etc, were all a result of so much gas being stuck inside.
The best part was her farting directly in the pediatricians face.
I swear, man. Kids can really make you terrified it's something serious, and it turns out not that bad at all. Especially this kid. Being a preemie we worry about nearly everything with her, while with Eli, eh, he'll be fine.
Oh and don't worry I threw away the ziploc poop. I just hope when the garbage truck picks up today that the bag doesn't flop out into the street.
- monkeygirl +1 this
Posted 14 February 2020 - 03:27 PM
Now I have to deal with a health concern about my daughter. Apparently she's only put on 1 lb over the last year and her weight percentile has dropped by 20 points. Doctor wants to test thyroid, adrenal, etc. Also suggested that maybe competitive soccer is too much for her body. I mean, she spends maybe 4 hours a week max playing soccer, AAP recommends no more than 8 hours/week for her age. (Side note: soccer parents are 40% jerks, 40% clueless, and 20% tolerable. I am praying we keep the only family I can stand if we continue.)
Saw the special ADHD clinic at our local children's hospital. Super judgemental about using medication because they are psychologists and therapy solves everything. Apparently, we will be spending August-November in weekly super intensive therapy to teach us how to not suck as parents. Never mind that we have jobs and more than 1 kid, the sessions are downtown from 1-3pm (during school), or 4-6pm (older kid's daycare closes at 6 and we wouldn't be able to get there until 7 fighting traffic).
Posted Yesterday, 02:02 AM
We were forced to pull the trigger on actually using our new pediatrician today. Luke was sent home from school with suspicion of pink eye. So we finally took him to the new place where we asked if they could do his 4 year check up as well. This doctor was WAY better. Luke wasn't. He doesn't have pink eye, only really bad allergies, but he was still grumpy and uncooperative as all hell. BUT this doctor actually listened to us and believed us when we told her that his current behavior wasn't representative of his typical behavior. She asked a few probing questions about him and then was just like, "yeah, sounds like he doesn't show any of the classic signs of ASD". That was huge for us and a first. We did talk also about his snoring and mouth-breathing, so she's referring us to an ENT and for a sleep study. We also talked about transitioning to private speech therapy because today was also his annual IEP meeting at school (which was moved up from May since he met all of his goals early.)
IEP meeting went very well. His teacher and speech therapist had nothing but good things to say about him. Well, they said he's like the classroom's "mini-teacher" or "cruise director" but I'm taking that to mean that he has excellent leadership skills and appreciates a good scheduled routine. All-in-all, he's doing well. His official evaluation doesn't actually expire or whatever until another year or so, so he's still eligible to stay in his early childhood program through the end of the year and he qualifies for full-day pre-k next year as well. The school intended to put him in a gen. ed. classroom next year with "extra supports available during core learning", but then they all agreed that he probably wouldn't need the extra support. His speech is improving. His behavior has improved tremendously lately (yay 4 year-old!!) and his new IEP goals pretty much sound like they just made stuff up so they'd have something to write. They're going to work with him on taking turns during cooperative games, like a typical 4 year-old, and increasing his narrative/sequencing speech (basically retelling stories and events in order).
We did decide not to send him back to public school next year though. He'll still be eligible for speech through the school if we choose that over the private speech therapy. We already enrolled him in the same homeschool co-op-like program that Noah's been doing for the past 3 years. We originally were going to wait on that because we're not fans of early academics necessarily, but the program is basically just memory work songs, fine arts projects, and simple science demonstrations. It's 2 hours one day a week. And Luke LOVES being there even though he's only there for a few hours in the afternoon and he's in the nursery. He's dying to be in "Noah's school" with his "big friends". Noah will be moving up to a full day program that includes logic, Latin, cartography/geography, science research, and persuasive rhetoric, and I'll likely be tutoring the afternoon grammar/writing class again even though I won't actually have a kid in that class.
Posted Yesterday, 04:16 PM
Still haven't found Ethan another ENT. The local Children's hospital has a severe mold problem that several kids have died from and aren't scheduling non-urgent surgery/procedures. Not sure I want my kid to be the first, anyway. I have a love-hate relationship with that hospital. They're good for initial diagnosis but after that I try to find specialists outside of them.
Medication is actually working really well for Ethan but he's now not sleeping well. I asked the doctor for advice and he said melatonin. Already doing that. I think we may actually cut a pill in half this weekend and try that.
And Quinn was fine. We started CBT for her this week and I think it's going to be really good for her. Still struggling with soccer. I think the real issue is her coach is not really coaching in a way the girls can understand, and he has zero patience for wiggly little girls. Like I get it that this is competitive soccer but they are 7-9 years old.
Posted Yesterday, 06:16 PM
I was once asked when I was interviewing for history teaching positions if I could coach a sport. I am WAAAAAAAAAAAY to competitive so coach anything. I would be the coach yelling at refs and throwing my clipboard down. Which is not a good look when you are trying to teach kids the value of team work.