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Now my daughter is in the hospital


49 replies to this topic

#26
Rock

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How is she Brando?



#27
Brando

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She's doing better, but there's still a lot of risk.  She might actually come home in the next few days with a PICC line, and receive in-home care.  They can't do anything about the clot until the infection is cleared up, so it might be that she's home for a few weeks fighting the infection and then going back in for clot treatment.  She's actually interacting with people and eating now, which is good.  We're past the "she could go at any minute" phase, but we've got a long time before we're in the "she's out of danger" phase entirely.  She could take a turn for the worse at any moment until that clot is gone.


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#28
Rock

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I'm taking that as all positive, Brando!  We're all pulling for her to make a 100% speedy recovery



#29
Destiny Skywalker

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I'm so glad she is out of immediate danger, I was so worried about her this weekend. Still praying for a complete recovery and that clot to clear up ASAP.

#30
Brando

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Thanks.  It's been the most terrifying thing I've ever experienced.  I really didn't think she was going to pull through.

 

She also still looks like a completely different baby, and will until the swelling goes down.  She's really a slender little girl, but she looks chunky because she's so swollen.

 

My sister-in-law is visiting from Pittsburgh and is going to pick me up and take me to the hospital tomorrow. 


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#31
Jacen123

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It is good to hear that she made it through the danger this weekend.  I hope so much for you that everything clears up quickly.



#32
zambingo

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My familys thoughts and prayers continue for you and yours, Brando.

#33
Ms. Spam

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She's doing better, but there's still a lot of risk.  She might actually come home in the next few days with a PICC line, and receive in-home care.  They can't do anything about the clot until the infection is cleared up, so it might be that she's home for a few weeks fighting the infection and then going back in for clot treatment.  She's actually interacting with people and eating now, which is good.  We're past the "she could go at any minute" phase, but we've got a long time before we're in the "she's out of danger" phase entirely.  She could take a turn for the worse at any moment until that clot is gone.

The picc lines are heartbreaking. I give you giant hugs. Even having her home is the best! Be extra careful around the picc area. Infections come from that area.



#34
Iceheart

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Im glad shes heading in the right direction. You have my ongoing prayers, too.

#35
Quetzalcoatl

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I was really sorry to read this, Brando.  I can't imagine how terrifying that must have been.  I'm glad to learn that she's heading in the right direction.  You have my prayers.



#36
Brando

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We got lab results, and they’re promising but not necessarily good still. She still has a lot of infection, so they’re thinking treatment might continue past next week. Which means our life will continue to be based around giving her IV meds, so I have to hold her down while my wife does it. Getting up in the middle of the night is really hard, unless I’m already awake from feeling terrible. 
 

On the plus side she’s smiling a lot more and is interacting a lot. She’s closer to her old self, which is awesome to see. She’s always been a really happy baby, so it’s been killing me to see her being so serious. On the other hand, I’m pretty non-demonstrative so she looks even more like me when she isn’t smiling.



#37
Metropolis

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I'm glad she's doing better. Hoping she pulls all the way through.

#38
Brando

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Thanks, yeah, I’m not going to be comfortable until I know the clot is gone.



#39
Iceheart

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Poor kid. Shes young enough that she wont remember the midnight needles, at least.

#40
Rock

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Update, Brando?



#41
Brando

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No real changes.  She was overall a little happier today, but it’s a lot of waiting and hoping.  And of course giving her meds at all hours.



#42
Tank

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Ooff... that's so hard. You're strong as hell to get through, especially with your own health being rough. I'd have ulcered out by now.
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#43
Brando

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The PICC line is out. She has 9 days of oral antibiotics and then hopefully we may be done as long as the clot resolves itself and nothing else crops up.
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#44
Darth Krawlie

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Fantastic news!

#45
Metropolis

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Sure is

#46
Tank

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GREAT!!!!



#47
Jacen123

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I'm so happy to hear that news for you and your family!



#48
Odine

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Woo Hoo! Good news! Man that whole experience must've been the worst.

#49
Iceheart

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Hooray!

#50
zambingo

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Awesome news!



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