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Crappy Health Issues and YOU


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Rather than derail the happy shameless self promotion thread I thought I'd start another one for us to share our miserable health experiences cause I know I'm not the only one that's gone through them. Currently I'm on bed rest because a couple months ago I started having intense pain in my back for some mysterious reason, like I still don't know what caused it, I was just cooking dinner when it came on. Anyway turns out I have a rare type of herniated disk situated right on the center of my spinal column pressing on the nerves on both sides of my spine and it's VERY close to my spinal chord. When we found out the doctor was pretty alarmist about it and basically said if I continued my normal habits I'd be paralyzed in six months and that's not really something I want. So for now I'm just kind of waiting around to see a neurologist who will recommend what I need to do going forward. I'm hoping (but terrified) I'm a good candidate for surgery because it's likely I'll make a good recovery with that option but we'll see. They keep moving out my appointment so hopefully I'll be back on my feet by the turn of the year but so far it's not looking promising. So how about you guys? Been through any crappy medical stuff? Still going through it? Feel free to share happy endings or rant in misery!

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I'm not at all hesitant to post bad stuff in a thread called "eclectic depression," so everyone here who's been paying attention knows I was diagnosed with fibromyalgia in June. I'm around a stage 2. The meds I'm on help some, but I'm in some kind of pain daily. I have pretty much every symptom displaying itself on the regular. There's no cure. Brilliant!

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At least in my case there's a strong chance I'll be just fine, I just need to be patient. God though fibromyalgia sucks Katrina. :( I'm really sorry you're going dealing with that. One of my good friends struggles with it and she says it's one of those things where you can have a really great day with manageable symptoms followed by a very painful day where she just kind of wants to do nothing. *hugs*

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Oh wow. I am so sorry. due to some recent family stuff I know dealing with doctor appointments and specialists suck. I hope they get you in soon, Jaycie. That sounds scary.

 

 

Not really a crappy medical issue for me but Saturday night my sister attempted suicide again. I know her life is sucky (a lot is her choices she has made) but I want to yell and scream at her that she is the only one who can make her feel better and not to dwell but I know it's wrong. I'm just so damn mad. Because there is so many other pieces that fall apart in a disfunctional household like my Mom's.

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Also, sorry to hear about the issues, ladies

 

I was diagnosed with bipolar disorder and pretty much lost my job as a result. Had a true manic state for the first time and work kept delaying the help I requested, which made things worse and worse.

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At least in my case there's a strong chance I'll be just fine, I just need to be patient. God though fibromyalgia sucks Katrina. :( I'm really sorry you're going dealing with that. One of my good friends struggles with it and she says it's one of those things where you can have a really great day with manageable symptoms followed by a very painful day where she just kind of wants to do nothing. *hugs*

 

Thanks :) I'm half in denial, and half learning to adjust to spoonie life. I think once I get over the denial part I'm going to turn into a mad advocate for research. I'm too young for this shit.

 

I can empathize a bit with you because of it, at least. I've definitely been bedridden before. My big symptom is pain and muscle spasms in my hips. X-rays showed that at one point I fractured my spine, sounds like close to where your disc herniated. For awhile, my doctors assumed that was the problem. It did heal poorly, so I have some arthritis in that vertebra that flares up sometimes. Stay laying low, baby yourself! That super sucks that they keep delaying your appointment, for chrissake, you can't put your whole life on hold forever! And pain is miserable :(

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Oh wow. I am so sorry. due to some recent family stuff I know dealing with doctor appointments and specialists suck. I hope they get you in soon, Jaycie. That sounds scary.

 

 

Not really a crappy medical issue for me but Saturday night my sister attempted suicide again. I know her life is sucky (a lot is her choices she has made) but I want to yell and scream at her that she is the only one who can make her feel better and not to dwell but I know it's wrong. I'm just so damn mad. Because there is so many other pieces that fall apart in a disfunctional household like my Mom's.

 

Yeah I'm feeling a bit impatient cause they've rescheduled me THREE TIMES now and I'm tempted to ask my doctor when I talk to her today (hopefully I talk to her today, I'm about out of pain meds and need to reevaluate that situation) if there's another place she can refer me to.

 

Depression is really hard to deal with, especially as someone looking in, unfortunately I have A LOT of experience with a wide spectrum of depression related disorders because they run deep in my family (and in some part myself). When I was much younger and had problems with that I thought I was a hindrance to everyone elses' happiness, I couldn't even fathom that they'd want me to fix my situation. She may have a different perspective but for me it wasn't about how miserable I was but the guilt from how I felt I was making everyone around me feel because I was a "terrible person." Grated this was extremely irrational, especially given I was only 13 at the time but I had been through a lot of verbal abuse at the hands of my stepmother and the thought was really, really ingrained.

 

I should note (in case there's concern) I'm pretty great now in terms of my depression (I'm clinically moderate), well managed overall and without drugs. One of my new medications does reduce my serotonin levels so that's hit me a little harder than I'd like but I've been bulking up on b vitamin enriched foods and lounging in the sun for a few minutes at a time twice a day. Working well so far.

 

 

I think I tore my rotator cuff in a minor way-- been dealing with pain in it for months. But it's a surgery that results in pain often worse than what it's supposed to repair, so I don't know...

 

Yeah that is not a good place to be in, meh. Hopefully therapy is an option and won't be stupid painful. >.<

 

 

Also, sorry to hear about the issues, ladies

 

I was diagnosed with bipolar disorder and pretty much lost my job as a result. Had a true manic state for the first time and work kept delaying the help I requested, which made things worse and worse.

 

Uck, what a bunch of tools. >.< I hope you're doing a lot better now.

 

 

Sorry to hear about everyone's health issues. :(

 

As for me, infertility is a bitch and the universe has an awful sense of humor.

 

I'm so sorry Nanci. :( Nothing I really can say will be adequate, just hang in there. *hugs*

 

 

 

At least in my case there's a strong chance I'll be just fine, I just need to be patient. God though fibromyalgia sucks Katrina. :( I'm really sorry you're going dealing with that. One of my good friends struggles with it and she says it's one of those things where you can have a really great day with manageable symptoms followed by a very painful day where she just kind of wants to do nothing. *hugs*

 

Thanks :) I'm half in denial, and half learning to adjust to spoonie life. I think once I get over the denial part I'm going to turn into a mad advocate for research. I'm too young for this ****.

 

I can empathize a bit with you because of it, at least. I've definitely been bedridden before. My big symptom is pain and muscle spasms in my hips. X-rays showed that at one point I fractured my spine, sounds like close to where your disc herniated. For awhile, my doctors assumed that was the problem. It did heal poorly, so I have some arthritis in that vertebra that flares up sometimes. Stay laying low, baby yourself! That super sucks that they keep delaying your appointment, for chrissake, you can't put your whole life on hold forever! And pain is miserable :(

 

 

Yeah I know what you mean as I lay around I often think "god I am way too young to be having this **** going on." I also have arthritis (fingers and legs) but that pales in comparison to this. Scaitica is like no joke, would not recommend.

 

Oh god a fracture? Honestly I was kind of worried that's what was going on with me, like my arthritis had spread to the area and weakened my joints but of course I'm not a doctor so my self musing was way off. I could see how that would delay a proper diagnosis of your actual issues though, the spine really effects everything else in a pretty fantastic way. I'm surprised sometimes how sore I get in places that seem completely unrelated to this issue.

 

Man, that sounds awful, Jaycie. Here's hoping surgery is the answer. Scary to go through but awesome to have a light at the end of the tunnel. Are you tearing through shows/movies/podcasts with all that downtime?

Oh yes! I'm like running out of youtube channels to catch up on haha. Gonna have to start making a new list of media to consume at this rate. Really keeping up on the election news, not sure if that's a good thing. Makes me really cranky, lol.

 

 

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Scaitica is like no joke, would not recommend.

 

 

 

Ah, so that's how your nerve problems are manifesting? Yeah, **** that. Sciatica is the first thing that ever went wrong with me. I was 19, and just walking across the kitchen, and I hit the ground and didn't get back up again for about a week. My chiropractor keeps the nerve from pinching off nowadays, and thankfully mine doesn't run inside of my piriformis, since that's always inflamed thanks to the fibro. I have some nerve problems in my legs that probably stem from the sciatic, but it's nothing I can't live with. I can't even believe they're making you wait so long to see a specialist if you have sciatica, that's just unbearable.

 

Yeah, weirdly, I can't even tell you what caused the fracture. I've been in some minor car accidents, and had a fair few falls, but nothing that sent me screaming to the ER. My doctor was really worried when she first found it because osteopenia runs in the family, but it's not that. It could very well be connected to the fibro, though, since fibro often manifests after a trauma.

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Dude that's when it came on for me, it was just random. I walked into the kitchen and was overblown by pain shooting through my right side. They put me on this medication that seems to dull it out but lord does it put me to sleep. Which after two months of not sleeping more than a couple hours a day I suppose I'm grateful for. Yeah I'm so annoyed, it'll be a month from my official diagnosis when I finally see them at this rate. I am out of hydrocodone as of tonight but my doctor wants me to go in on Monday before I'll have any of my medications adjusted (I was trying to get her to give me the okay to up the dose on the other stuff over the phone since it's worked the best for me and I'd really hate to stay on the opioid anyway) so I have a feeling this weekend may be a little rough, hopefully since I'm anticipating it I can get myself in the right mindset to deal with the higher level of pain.

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Ha! A common symptom of fibro is IBS, pinched nerves in the butt area often back you up, and pretty much every med for them will plug you up, too... let's just say poop woes are a very popular topic on my fibro support group board.

 

Jaycie, I don't know where you stand on the whole cannabis issue... but that might be an option if you run out of opioid this weekend... and I'm saying that under the safety and anonymity of an alias because I technically don't have a medical marijuana card... but really, it works as well as my Cymbalta. I'm currently trying to muster up the courage to ask doc for a card. CBD oil is legal in all 50 states, too, it's just hella expensive. I'm thinking about trying a CBD vape and seeing if that helps any.

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Oh, yeah, definitely on Mary Jane. It helped manage my grandpa's pain and issues when cancer overcame him. I shouldn't advocate it as a teacher but it is awesome for an assortment of ailments and I'd like to see testing for benefits. I live in Texas so laws are strict as hell.

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Eczema/ Psoriasis for me (my doctor isn't sure which one I have). I've had it for 16 years and it never truly goes away. I can always use anti inflammatory drugs to keep it in check, but there's rarely a time when there isn't a break out somewhere on my body.

 

I'm just glad that there are drugs at my disposal that offer some relief. Years ago when my mother first got it (it's hereditary) she was only 13 years old and didn't have access to the steroid creams used today to treat it. Even worse she lived in rural South Carolina before air conditioning, so it was just a rough thing for a kid to have to go through.

 

So I really can't complain that much, but it's been a constant ordeal for me and will probably remain so for the rest of my life. Mom still has it, too.

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Oh, yeah, definitely on Mary Jane. It helped manage my grandpa's pain and issues when cancer overcame him. I shouldn't advocate it as a teacher but it is awesome for an assortment of ailments and I'd like to see testing for benefits. I live in Texas so laws are strict as hell.

 

I just can't about how cannabis is so restricted and demonized when it helps so many people and so many conditions. Go back to June in the Say Something Random thread to see how HIGH AS MOTHERF*CKING BALLS I was in the first couple of weeks I was on Cymbalta. I have never, ever been that high on weed. But I'm legally popping Cymbalta every day, and have to use weed in secret, when it literally does the exact same thing for me.

 

I'm just glad that there are drugs at my disposal that offer some relief. Years ago when my mother first got it (it's hereditary) she was only 13 years old and didn't have access to the steroid creams used today to treat it. Even worse she lived in rural South Carolina before air conditioning, so it was just a rough thing for a kid to have to go through.

 

I am so thankful every day that I live in 2016 and have access to modern health care. So, so very thankful.

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Ha! A common symptom of fibro is IBS, pinched nerves in the butt area often back you up, and pretty much every med for them will plug you up, too... let's just say poop woes are a very popular topic on my fibro support group board.

 

Jaycie, I don't know where you stand on the whole cannabis issue... but that might be an option if you run out of opioid this weekend... and I'm saying that under the safety and anonymity of an alias because I technically don't have a medical marijuana card... but really, it works as well as my Cymbalta. I'm currently trying to muster up the courage to ask doc for a card. CBD oil is legal in all 50 states, too, it's just hella expensive. I'm thinking about trying a CBD vape and seeing if that helps any.

 

Yeah I am pretty heavily in favor of legalization so it's definitely something I wouldn't mind having at present but my access is limited. I AM considering asking my doctor to sponsor me getting a card (since it does help my depression/anxiety as well) but yeah, I don't know where she stands on the subject and am feeling timid about it. It's really ridiculous though it is so taboo, humans have been consuming it for centuries, they've found it in tons of ancient graves and traces of THC in some of the mummies from Egypt. We seem to have a long relationship with the plant and clearly it's not going anywhere because people will still look for it even when it's illegal.

 

Doesn't it seem like ALL medications have that issue? Like it's almost always on the list of side effects on the drug commercials.

 

Oh, yeah, definitely on Mary Jane. It helped manage my grandpa's pain and issues when cancer overcame him. I shouldn't advocate it as a teacher but it is awesome for an assortment of ailments and I'd like to see testing for benefits. I live in Texas so laws are strict as hell.

 

At least Obama did overturn the restrictions on clinical testing so hopefully going forward, even if it's not happening in Texas, we'll be seeing more studies done with the plant.

 

Eczema/ Psoriasis for me (my doctor isn't sure which one I have). I've had it for 16 years and it never truly goes away. I can always use anti inflammatory drugs to keep it in check, but there's rarely a time when there isn't a break out somewhere on my body.

 

I'm just glad that there are drugs at my disposal that offer some relief. Years ago when my mother first got it (it's hereditary) she was only 13 years old and didn't have access to the steroid creams used today to treat it. Even worse she lived in rural South Carolina before air conditioning, so it was just a rough thing for a kid to have to go through.

 

So I really can't complain that much, but it's been a constant ordeal for me and will probably remain so for the rest of my life. Mom still has it, too.

 

It's really great there is more treatments for it now, my mom has that and it's been a driving factor in her depression over the years since as you probably know full well it can be quite disfiguring. Thankfully she got a job with a dermatologist when she was a young woman and he helped her work through it. Now she's doing so much better with the options out there.

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